Support Groups Websites

Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.

Group providing information on this condition, a letter from Dr Beckwith, stories, tips and details of new research.

Support organisation for people with any of the seven variants of porphyria.

Edinburgh-based ME Self Help Group (MESH) for those with ME, as well as their families and carers. Events, meetings, postal library service, quarterly newsletter, plus forum and members-only pages.

Bristol-based day care and supervised play for children with special needs and their families. Includes facilities - serves all of South West England.

Charity improving the lives of those with mental health problems or learning disabilities. Research, service development and information to increase understanding.

Support for brothers and sisters of those with special needs, disabilities or chronic illness. Fact sheets, workshops and conferences, plus training for professionals.

Provides support for those with CAH, as well as their families, and raises funds for research. FAQs, information pack, publications, events, and stories.

Providing support for Epidermolysis Bullosa sufferers and their carers. News, events and community forum

Charity to support people with disabilities and life-shortening diseases, their families, carers and friends, offing care at home or in residential centres. Information on its services and chain of shops.