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Genetic Disorders Websites
- Category ID : 80776
Alliance of Genetic Support Groups
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
Cornelia de Lange Syndrome (CdLS) Foundation Outreach
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
Yahoo Group - Myotonic Dystrophy 2
A forum for sharing information, increasing public awareness, and building advocacy for further research for patients diagnosed with Myotonic Dystrophy Type 2.
Yahoo Group - ATR-X
Offers support for individuals caring for others affected by Alpha Thalassemia Mental Retardation Syndrome.
Trisomy 18 Foundation
Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.