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Proteus Syndrome Websites

Hamartoneoplastic malformation syndrome of uncertain etiology characterized by partial gigantism of the hands and/or feet, asymmetry of the limbs, plantar hyperplasia, hemangiomas, lipomas, lymphangiomas, epidermal nevi, macrocephaly, cranial hyperostoses, and long-bone overgrowth. Joseph Merrick, the so-called "elephant man", apparently suffered from Proteus syndrome and not neurofibromatosis, a disorder with similar characteristics.- Category ID : 75945
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Proteus Syndrome Foundation

Support and education for families and professionals. Includes abstracts, brochures, glossary, links and newsletters.
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NORD: Proteus Syndrome

Offers synonyms, a general discussion and further resources.
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Proteus Syndrome Foundation UK

Charitable organisation that supports and educates families and professionals about this condition and raises money for research.
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DermNet NZ: Proteus Syndrome

Factsheet with an overview, signs, symptoms and management.
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