Personal Pages Websites

Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.

Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.

In memory of Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18.

Personal story of a woman with a congenital reduction defect of her right forearm and how she achieved her present balanced state.

Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.